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This is yet another thing that people with medical conditions get blamed for—not managing their own care well enough, although according to this article NO ONE studies the efforts required to manage one's own health care.

(Content note: one use of the "O-word")

"But American medicine demands another scarce resource from patients, and that is their time. The time it takes to check in on the status of a prescription, to wait for a doctor, to take time away from work to sit on hold and hope that, at some point, someone will pick up the phone.
"There is a risk associated with not measuring patient work: namely, that patients will give up when life gets in the way. This is an especially acute worry for lower-income patients, who often work for hourly wages and have little space to change their schedules."


This entry was originally posted at http://firecat.dreamwidth.org/877700.html, where there are comment count unavailable comments.


( 3 comments — Leave a comment )
(Deleted comment)
Jun. 5th, 2016 12:59 am (UTC)
Everywhere medical care seems arranged to make things more convenient for the providers, not very convenient at all for the patient. Even for a healthy patient just managing checkup it can be a hassle. Even worse for someone who needs more or more specialized care!

Exactly. Don't even get me started about what it was like trying to get care for my mother when she became disabled from dementia. This was one major reason she ended up in a nursing home instead of being able to continue living at home with my dad's help.
(Deleted comment)
Jun. 5th, 2016 06:39 pm (UTC)
I'm glad you're healthy enough to make that choice, and I understand it. I don't avoid it altogether but I minimize it (refuse to get some of the ass-covering tests that doctors tell me to get, e.g.)
(Deleted comment)
Jun. 5th, 2016 07:45 pm (UTC)
I would consider that depending on what kind of cancer and what stage the cancer was at. Some cancers at some stages are mostly curable. E.g. I'm glad my mom chose to get treated for colon cancer when I was 20, I got to have her around for 30 more years.
( 3 comments — Leave a comment )

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